I have composed this post in my head at least 357 times. The longer I go without actually putting my thoughts into words the more I need to add to it. Now that so much has happened I find myself at a loss. How do I begin to explain my last two weeks?
I suppose I should tell you right off the bat that Sawyer did spend more than 3 days in the hospital... which was both a blessing and the worst experience of my life at the same time.
Sawyer appears healthy is active and happy, on this all of the doctors agreed.
Sawyer needs to gain weight, on this all of the doctors also agreed.
The first two days were a nightmare. Not an hour went by day or night when Sawyer was not disturbed by a doctor or nurse who wanted to examine him, take his vital signs, run a test, take some blood. He did not sleep and this was extremely traumatic for me. In those first few days they ruled out all of the scary stuff and left me with a thousand more questions than I came in with.
They never came right out and said it, but there was a time when they seemed to think that I simply was not producing enough milk for Sawyer to thrive. This was beyond devastating to me.
The pediatric dietician was the first to mention reflux... And she was adamant. Though sawyer was not presenting with the obvious symptoms such as projectile vomiting and extreme discomfort while eating, he was presenting with a variety of other symptoms that had been brushed off as various other 'normal' baby stuff by both me and my pediatrician. A persistent dry cough. Frequent choking or 'gagging' o his 'saliva', complainig while eating ( he often ate before sleeping and I assumed he was fussing because he was tired), turning his head sharply to the right while eating (apparently this closes off the pipe and keeps the acid from coming up). Then of course, the most important symptom, limiting his intake. Instead of being a fussy little man, my guy figured out that if he simply ate less he wouldn't have to deal with the pain...
So they started him on reflux meds and his intake went way up and he started really impressing the doctors on the scales. He was proclaimed to be cured and discharged from the hospital. Meanwhile, I have a small panic attack every time he takes a bottle or sits in his high chair for a meal.. worrying about whether he will eat enough... He has good days and bad, and I monitor his calories like a crazy person.
... and I do my best just not to let my mind wander too much because it's really easy for me to get to that place of self-blame where I beat myself up for having missed something so enormous...
The irony of it all is that I, the mom who flipped out over a bug bite or a possible sunburn had to spend several nights in the hospital with my baby whose official diagnosis going in was 'failure to thrive' - just typing those words makes me want to curl up into a little ball in the corner of a dark room.
And my mom was there. And I would not have managed this without her. And I hate that I'm not strong enough to have done this without her, but I have no problem admitting it as a fact.
And then it was time to move. Oh LOrd have mercy what a time to have to move. We did find renters, though, praise the lord. Somehow we managed to get everything done and we got in the car, drove down the road, and left our home of 5 years without a backwards glance.
During our long drive to Utah to see mike's sister and her family Sawyer began to refuse all food. He arrived at his aunt and uncle's house with his first ever fever. He continued his hunger strike for 2 days and even though he is eating better today he is still not taking in the calories he was after he left the hospital. I am doing better today, but when he really wasn't eating... when he would turn away from, cry, wriggle, and decidedly refuse every bottle we attempted to give him I thought I was slowly dying on the inside.
I am a private person, so having to undergo so much parenting difficulty so publicly in the hospital first and now with mike's family around, I have wanted many times to just take my precious little baby and run.
I cannot wait to get to Pennsylvania with my parents where I can finally begin to feel some normalcy again, and I pray that our transition to our new home goes much more smoothly than these past weeks.
In the meantime and through it all Sawyer has remained his happy, calm, and charming little self. I love him so.